Sixvibe

by Andy Mayer
Posted on 20 December 2012
read time: 3 minutes

Those of us in rude physical health bounce through life with barely a thought for the hidden communities of people whose lives are complicated by serious medical conditions.

One such group is young haemophiliacs. There are over 2,000 young men between the age of 10 and 25 in the UK alone who have to cope with the impact of living with a serious bleeding disorder on a daily basis. It doesn’t take a great leap to grasp the potential application for social networking to help tackle the isolation and lack of peer education suffered by this group of young men in particular.

So, when Mike Holland of VivaSix – an organisation set up to create communities around those affected by rare disorders and for the health care professionals who support them – wanted to talk about developing a social network for young haemophiliacs and a parallel site for the health care professionals, we were all ears.

Mike was already working closely with the haemophilia specialists at Great Ormond Street Hospital in London, but had failed to find a technical team whom he was happy to work with. He says:

Yoomee are different to other web developers as they specialse in this area. Their Agile project management approach means that they work with you to develop the scope as the project progresses and they’re flexible and client focused.

We can only agree. Adopting an Agile approach to developing two social networks simultaneously has helped to keep the wider project manageable and on track. We’ve also worked through the challenges of how to keep young men engaged with the site and each other, and encourage them to keep checking the site for new content. A brand new travel game built on our social game platform, along with a variation on the theme of building a band as featured on Aimhigher’s Student Babble site, both add to the reasons to return. But most of all we hope that when the site goes live in November young men will find the support and camaraderie which has remained elusive to them for so long.

Sixvibe – the site for young haemophiliacs – is focused on 11 to 18 year olds, but younger children will be allowed on the site, if they adhere to additional safety features, so there’s been plenty of discussions around online safety. As well as restrictions around how friendships are initiated, restricted use of personal photos (there’s a creative avatar builder for the younger age bracket to keep their identities hidden) the site also uses our moderation tool. This automatically trawls the site for potentially offensive language, and highlights phrases which might indicate bullying is happening or even that a member of the site is thinking of harming themselves.

http://vimeo.com/36074298

We also developed Haemnet – which is the network for health care professionals who treat people with inherited bleeding disorders. It aims to help connect professionals who manage people with haemophilia or other bleeding disorders. It is a totally free service that provides a secure online space in which you can share information about bleeding disorders and how they are treated, and in which you can talk about your experiences with your peers.

We also developed Haemnet – which is the network for health care professionals who treat people with inherited bleeding disorders. It aims to help connect professionals who manage people with haemophilia or other bleeding disorders. It is a totally free service that provides a secure online space in which you can share information about bleeding disorders and how they are treated, and in which you can talk about your experiences with your peers.

http://vimeo.com/36074298

Visit the site

http://sixvibe.com
http://www.haemnet.com

Posted on 20 December 2012 - By Andy Mayer
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